| Since any trauma can leas to a bleeding episode, all | | | | 1. An adequate knowledge of the disease |
| persons caring for these children must be aware of | | | | 2. sufficient emotional stability to accept the |
| their disorder. Hemophiliac children should wear Medic | | | | responsibility |
| Alert identification, and older children should be | | | | 3. a willingness to learn the venipuncture procedure |
| encouraged to recognize situations in which disclosing | | | | 4. the ability to follow instructions and to monitor the |
| their condition is important. During procedures such as | | | | transfusion |
| dental extraction or injections, health personnel need to | | | | 5. a willingness to accept the necessity of home care. |
| take special precautions to stop the bleeding. | | | | The nurse-skilled in veni-puncture techniques, if often |
| Unnecessary veni-punctures are avoided. A peripheral | | | | the person who teaches families to administer |
| finger-stick is better for blood samples, and the | | | | antihemophilic factor concentrates. |
| subcutaneous route is substituted for intramuscular | | | | In addition, the nurse must be familiar with the |
| injections. Hemophiliac children need to avoid salicylates | | | | properties of the concentrates and their preparation. |
| and any aspirin-containing compound. Aspirin inhibits | | | | For example, to hasten the missing process of |
| prothrombin synthesis, Acetaminophen is suitable | | | | reconstituting dried anti-hemophilic factor with diluents, |
| aspirin substitute, especially for use during control of | | | | the solution may be warmed or the vial gently rotated. |
| pain at home. | | | | Excessive heating or shaking of the container will result |
| Recognize and treat bleeding | | | | in loss of active anti-hemophilic factor. A filtered |
| Bleeding that occurs from a wound or close to the skin | | | | intravenous setup is usually supplied with the special |
| can be controlled by | | | | membranes to filter any particles in the solution. If the |
| 1. applying pressure to the area for at least 10 ti 15 | | | | solution is not thoroughly mixed before administration, |
| minutes to allow clot formation | | | | the filter will also remove the active factor. |
| 2. immobilizing and elevating the area above the level | | | | Transfusion reaction and viral hepatitis are potential |
| of the heart to decrease blood flow, and | | | | complications from replacement products. The nurse |
| 3. applying cold to promote vasoconstriction. | | | | teaches the parents and/or child the signs of |
| By teaching parents and older children such measures | | | | transfusion reactions or hepatitis and stresses the |
| beforehand, they can be prepared to initiate immediate | | | | necessity of notifying a physician of their occurrence. |
| treatment before blood loss is excessive. Plastic bags | | | | Not all children with hemophilia are eligible for or have |
| of ice and cryogel cold packs should be kept in the | | | | the opportunity of a home-care program for their |
| freezer for such emergencies. However, such | | | | hemophiliac children. Repeated hospitalizations are the |
| measures should not take the place of factor | | | | usual outcomes of bleeding episodes. Ideally, a core of |
| replacement. | | | | nurses should work with these children to maintain |
| The discovery of factor concentrates has greatly | | | | consistency of care during each hospitalization. |
| changed the outlook for these children. With scheduled | | | | Besides the physical goals of controlling bleeding and |
| infusions of the missing factor, bleeding can be | | | | preventing disability, the nursing objectives should |
| prevented and the child can live a much more normal, | | | | include fostering independence and self-care, providing |
| unrestricted life. To foster maximum independence, | | | | an opportunity for the children to discuss their feelings |
| home-care programs that teach the parent and/or | | | | regarding the disease, and a continuous re-evaluation |
| child to administer the drug have been instituted. | | | | of those factors that may influence a bleeding episode. |
| Families with hemophilic child should have: | | | | |